orphan drug development

Online communities

Global online communities for patients, families, caregivers, clinicians and researchers, enabling connections with others on a similar journey.

Why build an online community?

Sciensus partners with patient advocacy groups and research organisations to develop online communities aimed at fostering connections between individuals no matter where they live or what language they speak. These online platforms serve as safe spaces for people to share their personal experiences, health-related information and stories when living with their conditions. The primary goal is to connect patients worldwide, to support each other, and assist them in taking charge of their health. 

Benefits of an online community

Online communities can offer a wide range of benefits to patients, caregivers, and researchers.

White_Two-persons

Support and connection

These communities provide a safe space for people to share their experiences, emotions, and coping strategies, reducing feelings of isolation, and providing a sense of belonging.

White_Connecting-people

Advocacy and awareness

Members sharing their stories can enhance understanding of these conditions among the public, clinicians and policymakers, potentially resulting in increased research funding.

White_Message

Information sharing

Members can share information about the latest research, treatment options and specialised healthcare providers, empowering individuals and caregivers to make informed care decisions.

Partner with experience and expertise

If you’d like to find out how our partnerships can power your business, just contact us.